Painy Days & Mondays
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The Shadows Shift
The shadows are shifting, though not lifting. I still have days lost in total darkness and pain, dousing myself with ice and pills in a semi-vain attempt to ward off these things that are dragging me under. Last Tuesday I slept for nearly 27 hours straight with brief waking moments to medicate, change ice packs … Continue reading
Featured Posts
The way you respond to things changes when you have a chronic illness. You start to feel disappointed about things you never would have imagined could be disappointing, and happy about what many would feel are awful things. This is the complicated state of things within illness. It’s strange, the first time you rejoice over … Continue reading
Yes, this idea was totally borrowed/inspired by “You Look Great” and other Lies by Bruce Feiler in The NYT’s last week. I highly recommend you also check out the comments as there are many awesome ideas and thoughts included there. I’m pretty honest about my illness with my friends & acquaintances. I’ve found that, for … Continue reading
Reposted from my other blog from October 14, 2009. This was during the beginning flares that eventually led into several flares in 2010, getting worse at the beginning of 2011. A Twitter friend of mine brought it to mind, and after sharing it with her, I thought I should share it here as well. The … Continue reading
When do you stop believing in miracles? When do you understand that miracles probably won’t happen to you? When do you just say, to yourself, this is it? At some point every chronically ill person looks in the mirror, or into themselves, and stares into the vast, terrifying thing that is “chronic.” I once said … Continue reading
Quotes
- "I have learned now that while those who speak about ones miseries usually hurt, those who keep silence hurt more" - C.S. Lewis
- The most important thing in illness is never to lose heart. ~Nikolai Lenin
- A healthy body is the guest-chamber of the soul; a sick, its prison. ~Francis Bacon
- Illness is the most heeded of doctors: to goodness and wisdom we only make promises; pain we obey. ~Marcel Proust
- The longer I live the less confidence I have in drugs and the greater is my confidence in the regulation and administration of diet and regimen. ~John Redman Coxe
- The I in illness is isolation, and the crucial letters in wellness are we. ~Author unknown, as quoted in Mimi Guarneri, The Heart Speaks: A Cardiologist Reveals the Secret Language of Healing
- The... patient should be made to understand that he or she must take charge of his own life. Don't take your body to the doctor as if he were a repair shop. ~Quentin Regestei
